Monthly Archives: March 2016

🎼Me and My Fibro 🎶🎶🎶

When I was diagnosed with fibromyalgia several months ago, I had a very strange reaction to the news.

I felt a huge wave of relief wash over me.

That seems odd, doesn’t it? You are diagnosed with a life-altering incurable health issue that no one really knows much about, and you are relieved? After years of fatigue and pain and health issues that didn’t respond to the treatments like they should have, at least now I had a documented reason for the way I was feeling.

And I wasn’t just relieved by the diagnosis. I wallowed in it.

Too tired to do the laundry? Well, I have fibro – what do you expect?
Too exhausted for intimacy? Have a little pity, it’s not my fault I have fibro.
Too sore to go to the gym? I have scientific proof backing my choice to not exercise.

Honestly, I do have many days where it is a sheer act of will to get to the kitchen for a cup of coffee after getting out of bed. I don’t like showers because they are too painful for me, so I take baths, which leave me wiped out for a bit. I try not to schedule anything in the mornings since I don’t really know how long it will take me to get moving.

But I was using my health (or lack thereof) to justify not even really living.

So, here is my new mantra: Live life to the fullest extent possible, without using a diagnosis to make excuses. Now, if I honestly cannot do an activity, I won’t. My point is to not simply let my multiple health conditions take over and take away my life.

image

Here are some ways you can help (whether it is me or another individual):

1. Please don’t tell me I don’t look sick. I try to not look sick. Don’t most people try not to look sick? Many people suffer from invisible illnesses and are battling something others may never see.
2. Don’t ask me if I am getting better. My issues are not curable (yet) and they will not just go away.
3. Do ask me how am I feeling or how I am getting along. If I need to share my need for help or prayer in an area of my life, this gives me the opening to ask without feeling like I am dumping on someone.
4. Understand that when I use the valet parking at church or some other location, yet I walk in without any limping or other issue, I am not just being lazy. I am taking advantage of a service that is provided that, although I may not need it when I arrive, I may definitely need the assistance when leaving.
5. Don’t be afraid to invite me to do things. If I absolutely cannot, I will let you know. I would rather be asked and have to turn it down than to never be included.
6. Don’t feel sorry for me. Everyone has their own battles they are fighting, and everyone needs to be understood and cared about. Ask me questions about my health issues. If I can, I am happy to share with you what I know.
7. I am still me, no matter what my body is doing. You can still be my friend, and that is the most important thing you can possibly do for me.

Resources for more information (my specific invisible illness issues)
Fibromyalgia http://www.niams.nih.gov/health_info/fibromyalgia/
Rheumatoid Arthritis http://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Rheumatoid-Arthritis
Migraine http://www.americanmigrainefoundation.org/about-migraine/
Irritable Bowel Syndrome http://www.aboutibs.org/
Glaucoma http://www.aao.org/eye-health/diseases/what-is-glaucoma
Chronic Depression http://www.helpguide.org/articles/depression/depression-signs-and-symptoms.htm
Generalized Anxiety Disorder http://www.adaa.org/understanding-anxiety/generalized-anxiety-disorder-gad

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Just Another Day…

imageSo, this is normal for me.

I pick up my empty coffee cup from the table and go to the kitchen to refill it. After putting sweetener in my cup, I open the trash to throw away my empty Splenda packets. I see the dishwasher is cracked open a bit and I start putting away the clean dishes. As I put away a clean coffee cup, I remember I was going to fix another coffee. I place the cup on the coffee maker stand and realize that I forgot to get the meat for supper out to thaw. I go to the garage to get the meat from the freezer and see that I forgot to shut the garage door when I came home, so I shut it. I come back in and put the meat in the microwave to thaw. I start to fill my coffee cup and I decide I should probably look up the recipe for shepherds pie instead of winging it. I get on Pinterest and waste fifteen minutes looking at popular posts. Then I find the recipe. I start cooking the beef in a skillet, and go to get a drink of coffee and find I still haven’t made a cup yet. So I finally make the coffee, turn around to take a drink, and see the dishwasher standing open with six clean glasses still in the top rack.

…and that was just about a half-hour of my day… Is it any wonder I don’t get anything done?

17 Easter Basket Fillers That Are Not Food!

Let’s face it.  Children today have waaaaay more sugar in their daily diets than is healthy. Here are some non-food fun items to replace the candy:

  1. Books.  Can you ever have too many books?  (Rhetorical question: of course, the answer is no.) Story of Jesus
  2. Sticker books.
  3. Bubbles.  I found these carrot-shaped bubble necklaces at Dollar Tree®.  Carrot bubbles
  4. Frisbees.
  5. Play-Doh®.  I found these at Target®.  Play Doh
  6. Jewelry
  7. Bouncy balls are always fun, whatever the size, shape, color, special characteristics.  These light up and bounce in crazy directions, from Dollar Tree®.  bouncy balls
  8. Kites.
  9. Silly putty or silly slime.  I found these at Target®.  silly slime
  10. Jump ropes.
  11. Small action figures from favorite cartoons or movies.  Paw Patrol is a favorite with my littles, from Dollar Tree®.  Paw patrol
  12. Socks.  I give socks whenever I can since they seem to frequently run away.  Put them in a fun Easter egg!  These socks and egg are from Dollar Tree®.  Easter egg socks
  13. Stuffed animals.  Stuffed bunny
  14. Fancy pencils, pens, or markers.
  15. Crayons can be found in different shapes, and are great when paired with a coloring book.
  16. Chalk.  In egg shapes, obviously.  Chalk
  17. Sunglasses, for the bright sunny spring days ahead.

 

Many, if not all, of these items can be found at dollar stores and in dollar bins, including the baskets.  Considering I have nine+ baskets to create, I need all of the help and ideas I can get!

Easter baskets

What do you put in your Easter baskets?