Tag Archives: fibromyalgia

🎼Me and My Fibro 🎶🎶🎶

When I was diagnosed with fibromyalgia several months ago, I had a very strange reaction to the news.

I felt a huge wave of relief wash over me.

That seems odd, doesn’t it? You are diagnosed with a life-altering incurable health issue that no one really knows much about, and you are relieved? After years of fatigue and pain and health issues that didn’t respond to the treatments like they should have, at least now I had a documented reason for the way I was feeling.

And I wasn’t just relieved by the diagnosis. I wallowed in it.

Too tired to do the laundry? Well, I have fibro – what do you expect?
Too exhausted for intimacy? Have a little pity, it’s not my fault I have fibro.
Too sore to go to the gym? I have scientific proof backing my choice to not exercise.

Honestly, I do have many days where it is a sheer act of will to get to the kitchen for a cup of coffee after getting out of bed. I don’t like showers because they are too painful for me, so I take baths, which leave me wiped out for a bit. I try not to schedule anything in the mornings since I don’t really know how long it will take me to get moving.

But I was using my health (or lack thereof) to justify not even really living.

So, here is my new mantra: Live life to the fullest extent possible, without using a diagnosis to make excuses. Now, if I honestly cannot do an activity, I won’t. My point is to not simply let my multiple health conditions take over and take away my life.

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Here are some ways you can help (whether it is me or another individual):

1. Please don’t tell me I don’t look sick. I try to not look sick. Don’t most people try not to look sick? Many people suffer from invisible illnesses and are battling something others may never see.
2. Don’t ask me if I am getting better. My issues are not curable (yet) and they will not just go away.
3. Do ask me how am I feeling or how I am getting along. If I need to share my need for help or prayer in an area of my life, this gives me the opening to ask without feeling like I am dumping on someone.
4. Understand that when I use the valet parking at church or some other location, yet I walk in without any limping or other issue, I am not just being lazy. I am taking advantage of a service that is provided that, although I may not need it when I arrive, I may definitely need the assistance when leaving.
5. Don’t be afraid to invite me to do things. If I absolutely cannot, I will let you know. I would rather be asked and have to turn it down than to never be included.
6. Don’t feel sorry for me. Everyone has their own battles they are fighting, and everyone needs to be understood and cared about. Ask me questions about my health issues. If I can, I am happy to share with you what I know.
7. I am still me, no matter what my body is doing. You can still be my friend, and that is the most important thing you can possibly do for me.

Resources for more information (my specific invisible illness issues)
Fibromyalgia http://www.niams.nih.gov/health_info/fibromyalgia/
Rheumatoid Arthritis http://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Rheumatoid-Arthritis
Migraine http://www.americanmigrainefoundation.org/about-migraine/
Irritable Bowel Syndrome http://www.aboutibs.org/
Glaucoma http://www.aao.org/eye-health/diseases/what-is-glaucoma
Chronic Depression http://www.helpguide.org/articles/depression/depression-signs-and-symptoms.htm
Generalized Anxiety Disorder http://www.adaa.org/understanding-anxiety/generalized-anxiety-disorder-gad

Challenge Accepted! – Cheater Version

So, keeping up with this blog challenge is much more difficult than I expected.  I say that “life happens” a LOT, but let me tell you, A LOT of life happened this month!  I scoured the remainder of the non-completed list of blog prompts, and completed as many as I was able to do at this moment.  I promise to try to fulfill the remainder by the end of September, but this is not a guarantee that it will happen, just that I will try.  Here goes…

September 10 – Show us how to craft something to support our favorite football team.  I have the stuff, just need to make the time!  Sneak peek here.

September 11 – Capture the changing season with photos.  The leaves are not yet changing here.  Boo.

September 13 – What music have you been listening to lately?  My current favorite artists are Mercy Me, Rend Collective Experiment, and Big Daddy Weave.  I am loving Flawless by Mercy Me!

September 15 – What books do you want to read before the year is over?  I want to read Board Stiff, Five Portraits, and Isis Orb by my favorite author Piers Anthony.  I would also like to read How to Be a Hepburn in a Hilton World: The Art of Living with Style, Class, and Grace by Jordan Christy.

September 16 – Share a recipe using lots of fresh fall produce from the farmer’s market.  You may or may not find this fruit at your local farmer’s market, especially since it is considered a wild fruit.  I moved about 70 miles north of where I grew up, and some people here cannot believe that we eat these!  I am talking about persimmons, and the best dessert by far is persimmon pudding.  I miss it terribly.

By the way, the huge, bright Japanese persimmons you may find at the grocery store are not the same persimmons!

persimmon pudding page

This photo is of a cookbook that was published by my church in 1985, and you can tell persimmon pudding is a popular recipe by the number of times it appears in the book (there is another entry on the following page).  I might just have to make a special trip…

Aunt Nickii's Persimmon Pudding

September 17 – What is one thing you’ve always wanted to do?  I have wanted to go to Italy since I was a little girl.  When I was about kindergarten age, if I was asked what I wanted to be when I grew up, my answer was always, “A mommy, a teacher, and artist, and an Italian.”  This is finally in the works for 2017!

September 19 – Show us how to transition an outfit from summer to fall.  Are you kidding?  I am NOT a fashionable person.  About the only way I ever transition an outfit from summer to fall is to add a sweater and/or scarf.  I get so cold…

September 20 – Run a small business?  Tell us how you prepare for the holidays and the end of the year.  Considering my small business is sooooo small, as of now I don’t make any changes due to holidays and the end of the year.  Ask me again when it is actually going somewhere.

September 21 – Tell us about a new blog you recently discovered.  I was recently diagnosed with fibromyalgia.  I really didn’t know much about it, so I turned to… Pinterest®, of course!  I found several blogs written specifically about fibromyalgia, but one in particular caught my attention (since I also have rheumatoid arthritis) is Living Life As I See Fit.  For more information about fibromyalgia, check out National Fibromyalgia Association.

September 25 – Take a cue from postsecret and share something you’ve been keeping quiet about.  Today I am having a place on my scalp removed that may or may not be melanoma.  We will hopefully get a good result from the biopsy.

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